24th February 2018 at 2 PM : patients meeting in Brussel organized by FMD-Be

The first meeting to be organised by FMD-Be was held in the afternoon of the 24th February in the magnificent setting of the Club de la Fondation Universitaire, rue d’Egmont, Brussels.

FMD-Be would like to thank the Fondation Menarini, who sponsorship kindly provided simultaneous translations ( in English – French – Dutch) for the expert’s presentations and the discussions that followed.

To resume, twenty one patients were present  : coming mainly from Belgium, but also from the Netherlands, France, Switzerland, and the UK.

We would also especially like to thank Pam Mace, executive director of the FMDSA (USA) and Madelon Bouwmeester of FMDGroepNL (Netherlands) who were also present and have both shared their experiences and provided great support to us here at FMD-Be.

It was also wonderful to see Karen Rockell ( FMD UK and Ireland FB group/ Beat SCAD co- founder) and Rebecca Breslin ( Beat SCAD UK co-founder) with us representing UK Patients.

Three international experts presented the latest thinking on FMD and responded to questions from the patients : The Professors Patricia Van der Niepen (VUB-Belgium), Alexandre Persu ( UCL – Belgium) and Heather Gornik ( Cleveland – USA).

We thank them for their time and sharing their knowledge with us.

A summary of the meeting, validated by the experts is in preparation : We will keep you updated !

To see the program , click here : Program 24-2-2018 -WEB

Our lecture at the Second National Meeting on Fibromuscular Dysplasia (Brussel -10/12/2016)

Please find here our lecture  “FMD patient associations : Belgian experience and European perspectives (C. Jamison and V. Godin, FMD-Be)” at the Second National Meeting on Fibromuscular Dysplasia .

fmd-patients-associations-belgian-experience-and-european-perspectives-10-12-2016-engl