Welcome to the website of FMD-Be

and the European FMD patient network

FMD-Be is a Belgian association created in 2016 by a small group of patients.
This site aims to provide scientifically valid and up to date information.

It has been realised by the patient association in conjunction with a scientific (medical) committee.

FMD-Be is the nucleus of Euro-FMD, a European patient network created in 2019 and supported by a Scientific Committee from the European/International FMD Registry and Initiative (FEIRI).
Following this new initiative, translation of medical information provided on the FMD-Be website is currently in progress in more than 10 languages

This information is not intended to replace that given to you by your doctor!

 If you would like to speak with other patients, we have a Facebook group or you can join one of these other discussion forums


August 2019

        The ” First International Consensus on the diagnosis and management of fibromuscular  dysplasia” was published on January 16, 2019 simultaneously in the journals “Vascular Medicine” and “Journal of Hypertension”. The content of this website has been updated accordingly.

You can also read this document at the following address:

The First International Consensus on the Diagnosis and Treatment of Fibromuscular
Dysplasia (Jan 2019) Heather L Gornik ( Co Chair), Alexandre Persu ( Co Chair) et al.

Journal of Hypertension: February 2019 – Volume 37 – Issue 2 – p 229–252

Vasc Med 2019 (Epub 16 January 2019)