Polish Patient meeting as part of the 2nd International Symposium on FMD and Related Vascular Diseases. To see the program, click here https://szkolenia.mp.pl/szkolenia/bigsite.html?congress_id=15756&page_id=215153
Patient information at the initiative of FMDgroep Nl.
To discover the program, click here :
To register, see the following link :
To discover the program, click here : UK and Ireland First Patient Information Day
Videos of meeting available here –
The first meeting to be organised by FMD-Be was held in the afternoon of the 24th February in the magnificent setting of the Club de la Fondation Universitaire, rue d’Egmont, Brussels.
FMD-Be would like to thank the Fondation Menarini, who sponsorship kindly provided simultaneous translations ( in English – French – Dutch) for the expert’s presentations and the discussions that followed.
To resume, twenty one patients were present : coming mainly from Belgium, but also from the Netherlands, France, Switzerland, and the UK.
We would also especially like to thank Pam Mace, executive director of the FMDSA (USA) and Madelon Bouwmeester of FMDGroepNL (Netherlands) who were also present and have both shared their experiences and provided great support to us here at FMD-Be.
It was also wonderful to see Karen Rockell ( FMD UK and Ireland FB group/ Beat SCAD co- founder) and Rebecca Breslin ( Beat SCAD UK co-founder) with us representing UK Patients.
Three international experts presented the latest thinking on FMD and responded to questions from the patients : The Professors Patricia Van der Niepen (VUB-Belgium), Alexandre Persu ( UCL – Belgium) and Heather Gornik ( Cleveland – USA).
We thank them for their time and sharing their knowledge with us.
To see the program , click here : Program 24-2-2018 -WEB
To read the slides of Prof. P.de Leeuw and A.Maas, see here.